So Virginia Republicans are infuriated that the Democratic governor is going to break a solemn promise to kick disabled people (like me) off Medicaid, in return for the expansion.
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I want to read outside but there’s a painfully LOUD BUZZING PAIN which my sound level meter registers as 49.6 dB.
I think something’s wrong with the meter.
P.S.
It drowns out other noises. So the meter registered 67 dB with very loud traffic, but the buzzing was much louder still. And the meter dropped back to 51 dB with the buzzing alone.
P.P.S.
It’s probably distant painblower noise, perhaps from the far side of the highway. I hear it being throttled and revved up. If sound level meters can’t adequately measure painblower noise, then no wonder noise ordinances fail to address painblower pain-bombardment.
My neuro issues have been getting worse. I may have to cancel my upcoming neurologist’s appointment, because with my neuro issues, I can’t schedule a taxi to the appointment. Everything either require pain calls, whixch I can’t do with my worsening neuro issues, or inaccessible painfully designed websites, which I can’t navigate with my worsening neuro issues. My accessibility fixes aren’t enough to protect myself from the pain/animation on every paintaxi painsite but they are enough to break the site scripts. Feeling very sick-- on top of already very sick-- from trying topainday, going to paintry paingain painmorrow, cancel if I can’t get this set up.
The American healthcare system seems designed to exclude disabled people at every step. Just speaking from my own accessibility issues: 1st, the reliance on private insurance, except where Medicaid has been expanded. 2nd, the addition of work requirements in some states where it has been expanded, though fortunately not here. 3rd, the inaccessible bureaucracy. 4th, the reliance on inherently inaccessible pain calls and/or unneccessarily inaccessible web sites for everything. 5th, the lack of accessible transportation services. 6th, the lack of accessible facilities. 7th, the addition of flashing lights, loud noises, painscreens, etc. in waiting areas. 8th, the choking cleaning fumes. 9th, the flourescent lights. 10th, the lack of ingredient labels on prescriptions, and the difficulty of finding allergen-free prescriptions.
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Saw neurologist yesterday. new prescription for migraine meds, but nothing for hyperacusis. Loudness discomfort level has dropped below 48 dB.
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I really wish I could do this:
https://www.deviantart.com/amirai/art/Supposedly-Super-page-12-737376580
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1:50 AM. Loud helicopter buzzing.
Still working on the belated Seattle project. A lot of rsi, mirror-rsi on my off hand, and trouble sleeping. Also dizzy spells.
Could use some way to organize research from scattered sources, and write it up, without as much wasted time and typing pain.
Options:
I’ve tried Dragon, but the Mac versions are really bad for research. They’re oriented around stream-of-consciousness writing, and they go haywire if you have to use the mouse and/or keyboard to move about within the working document, to move between documents and check sources, or to correct it. It’s oriented around using user preferences, which it ignores, and voice correction, where it also goes haywire, to avoid the need for keyboard correction.
I can see why this might work for fiction writing, it helped Terry Pratchett, and for people with paralysis, but it’s more pain than it’s worth for research writing without paralysis.
I really wish it allowed users to disable full text control.
Current Solutions:
I use a basic adjustable table as a desk. Flicker-free monitor on risers. Vertical mouse on the right, with software for page up, page down, and scrolling. One-handed mini-keyboard in the middle, propped up on the left.
Calibre to organize files. Clearview to show pdf and epub files. NeoOffice and LibreOffice NBC for writing, and for drawing maps. NanDeck in Wineskin with blinking disabled for drawing counters.
Can’t use tablets due to visual and coordination issues.
Major problems include:
Trying to figure out which footnotes are the right footnotes when adding references. Getting to the right places in NeoOffice, since any one source is often relevant to many sections. I use the Navigator, but it doesn’t load by default. Finding if lost web pages are available on the internet archive, without knowing their addresses. Pre-processing files for Kindle. Importing files into Calibre, and typing up all the metadata.
Typing, typing, typing.
I think my best options are to avoid computer games, and take more breaks with either books, my kindle, or board games.
I already use Automator to simplify pre-processing, but different books have different requirements. Especially different web pages and different types of pdfs.
I haven’t found a good solution for data entry in Calibre.
I don’t know if it’s another sensory symptom or if it’s shaking, but for the past few weeks, I’ve felt like everything is always shaking. Of course helicopters buzzing overhead, cars idling nearby, etc. make it a lot worse.
P.S. Water and tea aren’t shaking, so we can rule out mysteriously-featherless tyrannosauria. It’s probably a symptom.
The Department of Transportation installed a set of painbeepers on a nearby highway crossing. Which was already dangerous enough. I’m sure this was for safety, but I’m not sure how knocking people down is supposed to improve safety, especially knocking people down when they’re supposed to be crossing.
P.S. Contacted the DoT about this.
P.P.S. I realize some of these are supposed to be alerts for blind people. But they can still be incapacitating and dangerous for any hearing people. I think it might help if they weren’t as loud, and if they weren’t as fast. I’ve sometimes had drop falls and seizure-like episodes from rapid beeping noises.
That helicopter has made 7 or 8 passes in the last 15 minutes, low, loud, shaking my apartment…
Correction, 10 or 11 in 20 minutes.
Feeling very sick today.
Sneezy, yellow postnasal drip, sore all over, very very tired. Why do I always feel so sick after too much noise exposure, or after transcribing?
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Transcribed another 25 minutes yesterday.
Feeling very sick again today. It’s like I’m allergic to noise, at what most people would consider normal levels.
P.S. 32 tracks, about 150 minutes to go.
Contacted my primary care physician.
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Go outside to get some fresh air and recuperate from noise/pain-induced illness.
Get beaten up with incapacitating construction pain.
Didn’t do any transcribing yesterday, still woke up sick today. Did another 3 tracks today. 108 down, 27 to go.
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Got knocked down and scraped up by a crosswalk beeper.
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Very badly beaten again.
It’s allergy season, the cherry trees are blooming, and I’m sick as usual… well, probably as usual.
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Awful migraine, sore throat, asthma attack, sore eyes, sore all over. No fever, of course, I haven’t had a fever since 2003 no matter how sick I’ve been.
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