Apparently, people with brain injuries often have sensory symptoms like mine, including motion sensitivity. Although I’m not sure when I would have acquired brain injuries.
Does anyone know if binasal occlusion, or other rehabilitation strategies, might help with strobe and/or motion sensitivity? Should I email my neurologist?
I had to look up binasal occlusion!
Can’t hurt to ask, though? So, I’d email your neurologist. But how long have you had these sensitivities? When did they start really impacting your quality of life? I assume you haven’t always struggled with them (but I could be wrong)?
Even in childhood, I’d get stabby pains from flashing lights. (And Space Mountain was not worth the line, or worth the pain once inside.) But I didn’t get blinded and disoriented and get post-ictal migraines until about 2014.
I got beaten up on a regular basis growing up, played soccer, got beaten unconscious in 1996, and get beaten by cops in 2005. I got hit by a car in 2009, and hit again in 2016. I had a number of drop falls earlier this year. I can’t think of a time that I’ve fallen-- rather than been hit-- and hit my head. Given the time intervals, 2005 and 2009 are the only likely candidates.
All of that could have certainly contributed to your sensitivities getting so debilitating. So, I’m team “email your neurologist.” I’ve discovered (helping my mom deal with her health care and trying to get relief for my sinus drainage issues) that you have to really push health care providers to get them to check out new ideas about what’s ailing you.
And I’m really sorry. All of that sounds horrible. You didn’t deserve any of that. And good luck.
Emailed.
Good! Let us know what they say.
Haven’t heard back yet.
Tempted to convert a couple of my eye-patches if I don’t hear back soon.
Since I haven’t heard back from the doctor, and since I have been up all night waiting for the computer to finish processing one pdf (I started at 9:30, it’s now 4:30), I decided to make my own binasal occlusion kit, mark 1:
I cut the patches a bit wide, so I have a blind spot in front of my nose. I also worry that as one or the other gets tilted, my sense of up and down might get off. I still hope this helps.
P.S. Pdf conversion went wrong, I’ll need to try again in the … afternoon.
I can’t figure out the proposed new policy. So I wrote:
Child detention is inhuman and will enable further abuse. Child separation is also inhumane and will often cut children off from the only people who understand their health and safety needs, such as allergies, food intolerances, seizure triggers, etc.
Your Comment Tracking Number: 1k2-96cq-bzzq
Okay.
There’s a black blur between my 2 fields of view. The right side is bigger and higher than the left side. The right side is tilted so its left side is closer, and the left side is tilted so its right side is closer. Typing is much harder as my hand moves between sides.
This does mean that no single flashing light is likely to hit both eyes. But I can’t see how else it is supposed to help, and in the long run I worry it may cause other problems instead of healing them.
Stupid question, but should the state with Sjikago be pronounced “Ijonwa” or “Ilinoi” or something else?
English has settled on “Ilinoi” now, even though the spelling was supposed to be something like “Ilinwe” brought into French.
Thanks.
Eyepatches keep falling apart, so I’ll need a better solution for binasal occlusion. Could try tape on old glasses.
Bothsiderists strike again:
So I heard back. As I understand it, I should have gotten any necessary neurological treatment then, when I didn’t have any access to any health care. So I am not covered now.
Marxism has no room for neurodiversity!
